Updated: January 7. 2019
Dr. Keith Roach.
Associate Professor of Clinical Medicine, Weill Cornell Medicine
Click title above to read how attending a Post Polio Members Group meeting provided advice, assurance and guidance for a young boy afflicted with AFM.
"That meeting reassured me
and gave me such insight,"
"They all said polio didn't limit their success. They had careers. They had families. They made me see that Lucian will do those things, too."
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Cick below for additional information
AFM information compiled by Prof. Michael Kossove
Final Michigan Polio Network Board of directors
Gwen Dyc-Schwendenmann, Carl Fenner, Bruce E. Sachs, Bonnie Levitan,
Laura Barbour, Diane L. Dych-Sachs, Vera Hazel, Timothy P. Brown, Rick Kugel,
Virginia Brown, Michael Scharl, Dan Matakas (left to right)
Mike W.R. Davis, Janice Gross, Roger Gross (bottom left to right)
More than 200 cases of polio-like illness under investigation; 80 confirmed
By Debra Goldschmidt, CNN
Updated 10:58 PM ET, Tue November 13, 2018
(CNN)There have been 80 confirmed cases of the polio-like illness known as AFM in 25 states this year as of Friday, the US Centers for Disease Control and Prevention said Monday.
In addition, there are 139 cases under investigation for a total of 219 confirmed and suspected.
This is eight more confirmed cases than the agency reported last week and 20 additional patients under investigation.
The CDC noted an increase in reports of patients under investigation who began experiencing symptoms in August, September and October. It has not identified the 25 states with confirmed illnesses, nor has it said how many states are reporting cases under investigation.
AFM, or acute flaccid myelitis, is a rare illness that affects the nervous system, especially the gray matter in the spinal cord, and can cause muscle weakness and sudden onset of paralysis. Last month, the CDC said that 90% of patients since 2014 have been children under the age of 4, although adults can also develop AFM.
Other symptoms include drooping of the face or eyelids, difficult eye movement, trouble swallowing or slurred speech.
Research is underway to determine the cause of AFM, although there is a focus on enteroviruses, which can cause respiratory illness and West Nile virus, and other viruses in that family.
According to the CDC, there have been 404 confirmed cases in the United States since August 2014. The number of cases may be higher, but the condition is not subject to mandatory reporting, so not all cases are reported to state health departments and therefore may not be counted by the CDC.
"Even with an increase in cases since 2014, AFM remains a very rare condition. Less than one in a million people in the United States get AFM each year," the CDC says.
AFM peaks every other year seasonally in late summer and fall. but experts have yet to identify a single factor geographically or otherwise to explain the cause. Also unknown: why some patients recover and others have prolonged effects.
This story has been updated to clarify the total number of AFM cases, how many are under investigation and how many are confirmed.
From Polio Perspectives, Vol 26, #4 2011
From Polio Perspectives, Vol 12 #2 1997
Michigan Polio Network is transitioning into
Post-Polio Health International.
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In the news...
As a polio survivor in Britain who depended on a ventilator to breathe he tackled the problem of being tied to an unwieldy breathing machine, a tie that severely restricted his ability to move around about his environment.
So he made a way to break that tie. He was an innovator who in 1962 developed a method of putting a ventilator on a battery powered wheelchair.
Cavendish's story is told in the new movie Breathe that is hitting theaters this month.
Brian Tiburzi,
Executive Director
Post-Polio Health International
