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Visit PHI International 

Updated:  December 7, 2019

Southeast Michigan Post-Polio Support Group
Winter Lunch Schedule

Click here for more information


Remaining 2020 dates:


Saturday, February 15, 2020 at O'Mara's in Berkley


Saturday, March 21. 2020 Shields Restaurant in Troy

You can support Post-Polio Health International by using the AmazonSmile Program. Amazon will donate 0.5% of your purchase price to PHI. You get the same great Amazon products at the same price and PHI will receive a donation! It’s a great way to support PHI and all it takes is for you to designate us at https:\\smile.amazon.com as your preferred charity. Just enter “Post-Polio Health International Inc” in the search box and start shopping and supporting PHI!


For more details on the program click here!












Click here to access all Polio Perspective editions!

"It's very important to hear from people who survived polio.
Until the disease is eradicated from the planet,

 we need to be vigilant about vaccinating."

Dr. Keith Roach. 

Associate Professor of Clinical Medicine,  Weill Cornell Medicine 

 

Click here to read full article

AFM: Lessons from the Past


Click title above to read how attending a Post Polio Members Group meeting provided advice, assurance and guidance for a young boy afflicted with AFM.


"That meeting reassured me
and gave me such insight
,"
 


"They all said polio didn't limit their success. They had careers. They had families. They made me see that Lucian will do those things, too."


------------------------------------


Cick below for additional information


AFM information compiled by Prof. Michael Kossove 


Enteroviruses 101 

Final Michigan Polio Network Board of directors


Gwen Dyc-Schwendenmann, Carl Fenner, Bruce E. Sachs, Bonnie Levitan,
Laura Barbour, Diane L. Dych-Sachs, Vera Hazel, Timothy P. Brown, Rick Kugel,
Virginia Brown, Michael Scharl, Dan Matakas (left to right)


Mike W.R. Davis, Janice Gross, Roger Gross (bottom left to right)

More than 200 cases of polio-like illness under investigation; 80 confirmed


By Debra Goldschmidt, CNN

Updated 10:58 PM ET, Tue November 13, 2018


(CNN)There have been 80 confirmed cases of the polio-like illness known as AFM in 25 states this year as of Friday, the US Centers for Disease Control and Prevention said Monday.


In addition, there are 139 cases under investigation for a total of 219 confirmed and suspected.


This is eight more confirmed cases than the agency reported last week and 20 additional patients under investigation.


The CDC noted an increase in reports of patients under investigation who began experiencing symptoms in August, September and October. It has not identified the 25 states with confirmed illnesses, nor has it said how many states are reporting cases under investigation.


AFM, or acute flaccid myelitis, is a rare illness that affects the nervous system, especially the gray matter in the spinal cord, and can cause muscle weakness and sudden onset of paralysis. Last month, the CDC said that 90% of patients since 2014 have been children under the age of 4, although adults can also develop AFM.

Other symptoms include drooping of the face or eyelids, difficult eye movement, trouble swallowing or slurred speech.


Research is underway to determine the cause of AFM, although there is a focus on enteroviruses, which can cause respiratory illness and West Nile virus, and other viruses in that family.


According to the CDC, there have been 404 confirmed cases in the United States since August 2014. The number of cases may be higher, but the condition is not subject to mandatory reporting, so not all cases are reported to state health departments and therefore may not be counted by the CDC.


"Even with an increase in cases since 2014, AFM remains a very rare condition. Less than one in a million people in the United States get AFM each year," the CDC says.

AFM peaks every other year seasonally in late summer and fall. but experts have yet to identify a single factor geographically or otherwise to explain the cause. Also unknown: why some patients recover and others have prolonged effects.


This story has been updated to clarify the total number of AFM cases, how many are under investigation and how many are confirmed.


Click above to read the MPN transition article 


From Polio Perspectives, Vol 26, #4 2011

From Polio Perspectives, Vol 12 #2 1997

Click to view the 1989 video

Coping Successfully with Polio's Late Effects

Featuring MPN members Dr. Maynard, Sunny Roller, Frank Lee and Charles Baker

Michigan Polio Network is transitioning into
Post-Polio Health International.
Click for more details.



  In the news...


We're still here...



Senator Mitch McConnell is a polio survivor.

Click here to view his story.




Mysterious 

polio-like illness

paralyzing U.S. children

October 3, 2016

Confirmed cluster of polio-like ‘mystery illness’ in Washington State
November 4, 2016

Important new paper on Anesthesia and Polio -- July 2016

Click here for information from the University of Washington on


Managing Fatigue

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